This study examined factors influencing informed assent, initial involvement, and ongoing involvement in HIV-focused CBPR research for African American children. Study participants were recruited from the Collaborative HIV and Adolescent Mental Health Project and completed an interview that assessed their attitudes about research activities. Findings from the study are presented, and can help researchers develop procedures facilitating ethics boards to assess the appropriateness of child assent in HIV-focused CBPR.
Traube, D. E., Cederbaum, J. A., Kerkorian, D., Bhupali, C., & McKay, M. M. (2013). African American children’s perceptions of HIV-focused community-based participatory research. Journal of Empirical Research on Human Research Ethics, 8(1), 79-90. Full Text.